Game Plan and Second Opinion

 First of all, I want to thank you all for the love, support, but most of all the prayers during our cancer journey. It is a daunting task at times but I have a lot of love and support to help me and crazy kids to keep my smiling!

One song that has really helped me and has kept me focused on God and His plan for me has been by Hope Darst - Peace Be Still. 

I don't wanna be afraid

Every time I face the waves

I don't wanna be afraid

I don't wanna be afraid

And I don't wanna fear the storm

Just because I hear it roar

I don't wanna fear the storm

I don't wanna fear the storm

Peace be still

Say the word and I will

Set my feet upon the sea

'Til I'm dancing in the deep

Peace be still

You are here so it is well

Even when my eyes can't see

I will trust the voice that speaks

https://www.youtube.com/watch?v=lsIpGiz3SfQ

It is true, I don't want to be afraid every time I face cancer but I am human and fear sneaks in. It isn't easy, it hurts- emotionally and physically but I know there are blessings in trusting in God and listening to Him. 

To update everyone, I had my PET scan and Dr. Skinner called with the results and Wil and I went in to see them and go over treatment plans. The PET did reveal that the spots that were seen on the CT were "hot" which means cancer (in the picture below it is the round very bright spot). The great news is that the PET didn't reveal more disease than what was expected from the CT. I have had some people ask me if it is still ovarian cancer since I don't have my ovaries (and haven't had them since 2012). The answer is yes, still the same cancer that keeps coming back. 

Wil and I have prayed diligently about the treatment options that were presented to us. We decided to go with the oral chemo drug but to start it after our family vacation mid-September. I have to get an eye exam, Echocardiogram (ultrasound of my heart), labs, and chemo teaching done before I am to start the medication. One of the praises is that insurance has already approved the med, so we are good to go on that front. Wil and I go in on 9/2 for the chemo teaching and the labs, awaiting insurance approval for the echo. 

We also decided it was time to get a second opinion. We see this not that we don't trust our oncologist because we most certainly do, but just as gathering more information. It is possible to get other treatment options (for now or in the future) or that we end up with the same exact treatment plan we are already pursing. 

Thank you to Jim Condon, one of our family friends, for pulling some strings for us at Johns Hopkins. Wil and I will be going up there the beginning of October to be seen in person. One of the people that helped set this up was named Lisa. Another God moment happened when she called me to get my details, and asked about my (919) area code number. I've had the same cell number since high school and told her I grew up in the Raleigh area. Lisa told me that she is from PA but went to college in Winston-Salem. So we got to talk about Dewey's Moravian cookies and sugar cake. She also said that it was a nice change of pace to have such polite people to talk to when we kept saying "yes ma'am and no ma'am." 

Athena's Run for GYN cancers has been a great event we have participated in for the last 8 years. Due to COVID, there will be no actual run this year but they are still raising money. This money goes towards research, funds special projects for the local GYN cancer support group that I have been part of since my diagnosis, and much more! Please consider "adopting" a flamingo to flock the yard at my cancer center and help in the fight against this terrible disease. 

https://www.athenasrun-ws.org/

Life doesn't stop just because you have cancer. I still work full time, I am running (having to start back slowly after my stress fracture), spending time with family, and enjoying the life God has given me. 

Right after a run

Story time with Daddy

More than anything, we love having prayer warriors out there. Here are requests and praises: 

1. Prayers for continued wisdom and guidance as we start this next treatment. 

2. Prayers for minimal/manageable side effects from the medication.

3. Pray that the drug is effect and works quickly. 

4. Praise for getting second opinion scheduled. 

5. Praise that the new chemo drug was approved by insurance.

6. Praise the PET results were consistent with the CT and no further disease was seen.  

Whack-a-mole Round 4

 First of all, I totally dropped the ball on updating my blog after surgery. My main issue that plagued me since surgery was diarrhea. It was all just caused from the surgical changes. After seeing my GI doctor, it has evened out with medication. 

I had a routine CT, labs, and physical exam back in March/April. Everything looked good then, including the new cancer marker, HE4. Before surgery with known tumors it was 68.7. In April, it was down to 49.5. The end of June is when it changed and starting increasing. It bumped up to 54.7 so made the plan to check it again in four weeks. 

We hit our knees praying that the blood test would show it decreasing, but our want was not God’s will. It increased again and up to 60.5. So Dr. Skinner ordered a CT scan and Wil and I went in this last Thursday for the results. Unfortunately, my cancer is back. There are three spots that were seen on the CT. The game plan is to get a PET scan to verify what we already know is there and see if anything shows up. 

The good news in this is that the treatment plan does not include surgery at this point. Also, the blood marker works so we can monitor my cancer better. There has been so much research and new treatment options for my exact type of ovarian cancer done in the last 8 years since this journey began. 

The way that my cancer works is that like playing whack-a-mole. It will be something that I will always deal with on this Earth. When that dang mole pops up, we whack it back down with a new treatment. I have stopped the Letrozole oral medication and we were given other treatment options to consider while we wait for the PET scan. 

Our prayer requests as “beast mode is activated” (my cancer sister Erin told me this one):

1. Praises for the research development on low grade ovarian cancer treatments. 

2. For the PET results not to show anything other than what was seen on the CT scan. 

3. For us to see the blessings in the brokenness. 

4. For wisdom and guidance as we consider the treatment options. 

5. Most of all, for God to be glorified in my cancer journey. 

IV for the CT scan

Contrast for CT scan, Bottoms up!

The largest of the three tumors on the CT scan.

Recovering at home

We officially got to go home on Sunday. I had to do a bladder test first though. The nurse filled my bladder through the catheter with 200 mL of saline, then took the catheter out. I then had to pee out at least the 200 mL. Let me tell you what, peeing out cool saline is such a weird sensation. But I officially passed!

Getting home was pretty uneventful. I was able to take my first shower since Tuesday morning and my hair had enough grease in it to fry some chicken. My sister Lauren told me it was so bad I had to use shampoo twice....

Wil and I waited until Monday afternoon to pick up the kids from daycare. I was feeling good enough to go with him. As soon as Wil got out of the car , Wilson saw him from the playground and starting yelling "My daddy!!!" Then he saw me and he started yelling "My daddy!! My mommy!!!" He was very curious about my boo-boo and tried to lift up my nightshirt to see it....

Wilson has found a new toy in my incentive spirometer. This is a device used to make you expand your lungs after surgery to prevent pneumonia. He loves to blow into it to make the indicators bounce around.

The rest of the week has been spent in bed with my Mom binge watching the last two seasons of Real Housewives of OC. I haven't had much of an appetite, so I'm losing weight.

Now onto the bowels... I've had pretty severe diarrhea, like every 20 minutes or so. Dr. Skinner gave me the go ahead to take Imodium. Then it evened out. Wednesday after about noon, I didn't have any bowel movements or farts... Not a good thing. I was having pretty severe abdominal pain/cramping with no relief. Then at midnight, after trying to take a Zofran, I started throwing up . Keep in mind that my abdomen is held together from a vertical incision with 27 Staples. I felt like I was being ripped apart. Then another vomiting episode at 2:30.

I called my oncology nurse, Lauren, the next morning . She talked to Skinner and I was sent to get some x-rays done to make sure nothing was wrong. All they showed was my bowels needed to get a kick start, so here comes a suppository. I did thank Skinner for violating me from afar. All is good now !

Now that everyone is up to date on my bathroom habits .... I went in today to see Liz one of the practices' PAs (and one of my favorites ) to get my staples removed. Wowza, that wasn't fun at all... Thankfully I was the only patient there at the time because I yelled a couple of times pretty loudly. I feel better now that they are out though.

So game plan, I still can't drive until I can twist around, stomp my foot, and laugh without holding my stomach. I've already started the new medicine (aromatase inhibitor) to stop the conversion into estrogen. I'll follow up with Dr. Skinner on December 2nd.

A big thank you to all of our family that has stepped in to help take care of me and the kids. Thanks to my parents who have stayed with us this week, helping with me, the kids, laundry, and chores !  We couldn't have done this without you ! And especially to my hubby Wil, he slept every night at the hospital with me in the most uncomfortable sleeper chair imaginable. He wiped my butt (since I couldn't bend around to do it myself), was patient with me, encouraged me, and prayed for me when I couldn't find the words.

I would like to thank all of you praying for us and for my recovery. I love all of my cards, texts, meals, and gifts.

Prayer requests:
1. That God continues to show us glimpses of His goodness in this cancer journey.
2. For my abdomen to continue to heal and for more mobility .
3. For my bowels to even out and no more vomiting episodes .

Praise reports:
1. Staples are officially gone.
2. Great medical team on my side that helps with any need that comes along with compassion and humor

"And we know that in all things God works for the good of those who love him, who have been called according to His purpose." Romans 8:28

Hospital recovery

Whew y’all .... what a week. The days and nights are starting to blend together but I’ll try to give you the highlights.

Bowel prep Monday was as fun as ever. Only clear liquids to eat and pounding a whole bottle of miralax in Gatorade. Uggg getting nauseated just thinking about it.

The kids left Monday night to go to Wil’s parents for the week. We had to wake up super early for a check in time at 5:30 am at the hospital . After getting checked in, changed into my hospital attire, I had to say goodbye to my family in the hallway to preop and will came back with me. We had to sign all the consents and meet with all of the doctors. Our team was amazing and I was blessed to have an old ICU coworker set me up with a great CRNA. She gave me some Versed and I don’t remember much after that.

In surgery, my docs found more than what was expected from the scans. My surgeons took out about two feet of small intestines and part of the large where the one mass was seen. The lymph node was taken out as well. Then there were places on my bladder that had to be removed, the largest one about the size of a thumbnail. The good news is that they were able to remove the tumors, I had less adhesions than the last surgery, and no illeostomy!

So they left the catheter in to allow my bladder to stay decompressed and allow to heal. The game plan is to remove it today and then allow me to pee and then scan my bladder to ensure I’m fully emptying it.

The first room they put me in was hot as hades. Apparently the lady wh8o was in it before me had it set to 80 degrees, so I became very nauseated. So after engineering came in and couldn’t get the air to work , I was transferred to the room next door.

That day is still really foggy. The following day I was advanced to clear liquids, which backfired. I was throwing up all night and extremely nauseated. Dr. Stuart took me back to ice chips and started some medication to help my bowels to move. The first day that I wasn’t sleeping all day and felt more like myself was Saturday. Today is even better. I have only been on Tylenol for pain for several days and medicine for gas. I am on a regular diet and handling it well.

Dr. Skinner just did rounds and I'm going home today! Just waiting on orders and getting this catheter out!

Thank you all for the prayers and support. God has answered a lot of prayers. Please pray for continued healing.

Breakfast on Sunday

Pancake socks since I couldn't eat

Apparently I took a selfie after surgery

Going for a walk

Sunrise on one of our morning walks

Just one of my many bruises

Waiting in pre-op

Pre-Op

First of all, we are blown away from all of the support, prayers, texts, cards, and offers to help we have received since posting the blog. I honestly wanted to put our story out there to help other survivors and to show God's goodness despite how dark your circumstances may seem. 

I have been told "you are so strong" but I don't completely agree with that statement. I'm certainly NOT strong but I have a strong God on my side. He is fighting the battles for me. I have been praying since I found out the diagnosis that God would use this situation to show His power and love through me. 

I wanted to feel normal, feel productive, and see my friends... all good reasons to go on a work trip but in hindsight, probably not the best timing on my part. We got the news on a Thursday that my cancer was indeed back and I left the following Monday for a regional meeting in Tampa. 

The flights down to Tampa were uneventful and I settled into my hotel easily. I was able to see my other Medical Regional friends and relax. The next day I got sick, something that has been happening every week and a half or so. I missed a lot of the meetings since I was in the restroom. I finally waved the white flag and went back to my room for a few hours. I was able to rally and come back for the afternoon sessions. I know that I worried the pants off of Wil being so far from home and ill. Thankfully, I have a good support system with my work friends (big thanks to Lisa and Erin for looking out for me). The rest of the week was uneventful from a health standpoint but I was ready to be home and back with my family. 

Tuesday rolls around and Dr. Skinner took the time to call me to let me know that her and Dr. Stuart went through my scan. She had some good news that it looked like the surgery wouldn't be as involved as originally thought but I would learn more from Dr. Stuart. I can't tell ya'll how much it means to have such an amazing oncologist on your side. She is never rushed during our appointments, makes sure to let us ask all of our questions, jokes around with us, and is intelligent and an amazing physician and surgeon. 

Wil and I went to see Dr. Stuart, who Wil calls "a good ol' boy like me." He is down to earth and was a surgeon I worked with in ICU when I was there at the start of my nursing career. Dr. Stuart was always kind, even when I had to call him in the middle of the night about one of his patients. 

The good news we received was that the tumor on my colon is on the RIGHT side where my appendix was removed from the first surgery and not the LEFT side where the initial bowel resection was. If the cancer is just on the right side, he doesn't think that I will have to have an ileostomy. We take this all with a grain of salt since there is always a potential that the surgeons find more when they open me up than what is shown on the scans. 

Surgery is officially scheduled for Tuesday, October 29th. That means I have bowel prep on Monday (think of a whole bottle of Miralax in 2 Gatorade bottles- YUMMMMY). The hospital stay will depend on what is found during surgery. 

Prayer requests: That nothing else is found during surgery than what is seen on the scans, for a quick recovery and short hospital stay, for Wil as he will be taking care of me and the kids while I recover, for God to give us some of "glimpses" into His good plan at work this time just like He has so generously showed us during previous legs of our cancer journey, and for my dear friend Erin from work who is also battling this terrible disease. 

Third time’s a charm

Not again, not now. Those were my first thoughts when the pain started. I tried to ignore it for weeks, hoping it would just go away. I had a sinking feeling that the cancer was back but kept praying that wasn’t the case.

In September, Wil and I made our way to my oncologist for my six month check up. I told her about the pain I had been experiencing. My exam was completely normal but she ordered a CT scan. After waiting for insurance to approve it, I went in for scan. Then I got the call from my doctor. I had an enlarged lymph node in the area my cancer has been before. She was ordering a PET scan which would shows cancer as “hot.” We continued to pray that it was not  cancerous, but God had other plans.

I got a call the day after my PET scan from the scheduler saying I needed to come in the next day at 3 pm to see my oncologist. I felt like I had been punched in the throat , my breath was knocked out of me. I immediately tried to called Wil who was trying to call me at the same time. I knew he was upset too. We had to continue to wait, which sometimes is the worst thing.

The next 24 hours seemed to creep by. I just wanted to know what was going on in my body. I wanted the action plan, I wanted to fight this thing head on.

Wil and I prayed in the car before we went into the cancer center. My dear friend prayed for me the day earlier and it stuck with me. “Dear God, if we had the immense love for Katie that you do and the wisdom of the future that you did, we know that we would want the same thing Lord.” I continued to pray that God’s will would be my own.

As we walked into the renovated waiting room, I saw pictures on the wall of survivors, myself, and my dear friend Tracy who has already gone on to be with the Lord. I missed her with an intense hurt especially going through this again.

We were escorted back to our exam room and waited some more. Dr. Skinner came in and sat down and told us “this isn’t the end of the world but we have work to do.” She went through the whole scan and explained it all. When she scrolled down to my pelvis, that lymph node lit up like a spot light, not a good thing. She explained that there was also a place on my colon that had tumor pressing into it. This would mean open abdominal surgery, the third one in 7 years. A general surgeon (who helped with my first surgery) would be doing the bowel resection. We will meet with him on 10/22 for more information. There is a chance that I may have to have a temporary ileostomy to allow my bowel resection to heal properly.


Since my cancer has historically been low-grade (meaning it doesn’t grow quickly), new research has shown that chemo is not very effective. The plan is to send the tumors to pathology to make sure it hasn’t mutated to high-grade (quickly growing). If it is still low-grade, then no chemo and I will start an oral medication to stop the my body from making estrogen from adrenal glands (which feed my cancer).

My blood marker (CA-125) has never been very reactive to my cancer so it isn’t a good indicator for me. My doctor ordered a different blood level (HE-4) that may help to monitor me in the future.


As soon as we walked back to the truck, I lost it. I was mad and angry about having cancer again and mad that I may have to have an ileostomy . I literally folded over in my seat, crying and screaming. I was crying out to God. I yelled my prayers, I screamed for peace, I sobbed not to have to have the illeostomy. There were tears and snot everywhere. I screamed and cried so hard I actually broke blood vessels all around my eyes. Finally I composed myself enough that Wil could drive me home.

My husband was in protector mode. He was trying to do what would be best for me. He made sure to notify our families so I didn’t have to put it into words. We decided that we wanted to get the kids from daycare since that would help preoccupy our minds. I called my friend Erin from work who is also battling ovarian cancer. Since she is in the medical field, she understands the ins and outs of the disease. It's really good to have a young survivor that understands the journey.


Needless to say, we've seen God move mountains many times in our lives and we know he will do it again. We will enter this sword fight armed with stones knowing that God's power is sufficient for us.

We ask for prayers that the spot on my colon is small and won't require an ileostomy, that the recovery is quick and manageable, and the cancer hasn't mutated to high-grade.

Pain at Mother's Day

Mother's Day may seem like a celebratory day for most. What you may not see are the people that are mourning the loss of their mother and feel her absence even more palpable on this particular day. Or the couple who has been struggling with infertility for years, who feel the ache in their chest when you ask when they will start having kids.

I can tell you that 10 years ago, when I imagined my life today, I saw being married with a couple of kids. I never imagined the journey that God would take me and my husband on. Cancer has taken many things from us, temporary loss of hair, eyebrows that never fully came back, my body, my ability to carry or conceive children, my health. What I never imagined was all that we gained from cancer. Wil and I are praying more together, more involved with our church body, digging deep into the Word, memorizing Scripture, life long friends that we met during chemo, and most of all, being fully reliant on God and His plan for our life.

I'm not saying that each leg of this journey has been easy. There are times where I have questioned God, Why? Why me? Why this pain? Why this heartache? But there has always been the gentle reminder that I am a child of God. My identity is not in being a wife, or successful at work, or even being a mother. My identity is in who I am in Christ. This doesn't take the yearning I have for being a mother out of my heart or the pain I feel on Mother's Day when I am not one yet, but I know that God is shaping mine and Wil's heart and life to be more like Him.

God never promised an easy life but one day, "He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.” Revelation 21:4

I hope and pray that each of you struggling will find peace during Mother's and Father's Day.