Finishing Round 1, with a few less hairs

We are currently in the 4th of 4 weeks of the first cycle of chemo. I'm feeling pretty good this week since I don't get any chemo on the 4th week of the cycle. 

Surprisingly, I have felt better overall with IV chemo than the TERRIBLE oral chemo I was on before. I feel yucky for Monday-Wednesday on chemo weeks and feeling better by Thursday or Friday.

My cancer markers are moving in the right direction. My exam on Monday was good. The plan is to get a CT scan after the third round to fully assess the progress. Dr. Skinner did say we are starting with 6 rounds but it could be more depending on the effectiveness of the chemo.

Starting last Friday, I noticed that my hair was starting to fall out. It was increasing rapidly by Sunday. Wil and I decided on Sunday that it was time to shave the heads ! 

Wil was the first up so Wilson could see him get it buzzed. Wil had an amazing idea to do mine and Wilson's at the same time. Right down the middle! Midway during my cut, I looked like Rufio from Hook. 

Tuesday, I was able to do a calligraphy project with Emma Hemphill. We had so much fun and I was able to give her some tips and tricks.  She did an amazing job! Then I was able to meet up with my friend, Ann for lunch and a walk in the park. 

Tuesday afternoon, my remaining hair was really bothering me. It would get hung up on the pillow and tug and pull. I could barely tug on it and I was still getting chunks out. I just wanted it out. So with Wil's help, buzzed it closer then shaved it. It felt so much better and made me stop picking at it. 

Thank you all for continued prayers and support. Below are specific prayer requests. 

1. Praise for cancer markers dropping and pray for continued good results. 

2. Pray for my blood pressure to come down (one of the side effects of one chemo- Avastin ) . 

3. Prayers for Wilson and Parker as we transitioned into me not having hair. 

4. Prayers for endurance for the months old treatment ahead of us. 

Round 1 of 6, week 1 of 4

 Monday was our first chemo. I got some funny looks and stares, but to be expected with this fun hair! Wil was able to come with me to my first chemo.

Teal diva gifted me this awesome infusion shirt. It unzips right at the port site, whether it is on the right side or left side. It kept me warm and was a great thing to have, plus it was the perfect color. Thanks again, Shannon!

The nurse that accessed my port actually use to live on our same street! She drew labs which we had to wait for the results before they could hang my pre-meds. Wil and I are no strangers to waiting. The updated chemo room had much more comfortable chairs for Wil.

Then, we got the go-ahead to start my pre-meds. This is when I get my iv Benadryl nap. To decrease the risk of having neuropathy (numbness) to my fingers, I put cold pack gloves on. They feel like boxing gloves. So I needed Wil to help adjust my headphones, blanket, etc. While I was sleeping, the nurses told him since I was using the cold gloves and needed more help, he was allowed to come to all my infusions! This is a huge praise!

I've been tired and a little nauseated, but not terrible. I did get the flushed face for a few days, probably from the steroids. The kids have been sweet and Wilson extra snuggly. 

I go back to work Friday & Saturday. Thank you for all of the prayers & support.

Crazy, fun, colorful hair

These last two weeks have been such a whirlwind.

 Wednesday morning, Wil and I had chemo teaching at the cancer center. The education nurse, Amy, did an amazing job along with the pharmacist student. I got these cold mitts to wear when the Taxol infuses. This helps to decrease my hands getting the chemo which can cause (and did in the past) neuropathy. Feels like a dulled sensation. 

That afternoon, Wil drove me to get my second COVID vaccine. It was a quick and easy process. I got the Pfizer one. Afterwards, had a sore arm, slight full headache, and swollen lymph nodes. 

Saturday, Wil and headed to see my wonderful and talented sister, Lauren, to get my hair done before chemo. I have been growing it out for almost two years to be able to donate it again. 

The first step was to get my hair prepped for donation. I felt like Coolio and we all took a turn cutting some off !

Then Lauren and I got to have some sister time during the coloring progress. She kept it a secret what the final look would be. And as always, she did a phenomenal job! 

Prayer requests:

1. Praise for healing process with port already with minimal discomfort. 

2. Huge praise for very little side effects from my second COVID vaccine and ability to get it before chemo starts. 

3. Pray for peace and comfort during chemo on Monday. We go in at 10:30 and Wil is able to come with me for my first infusion. 

4. Pray for minimal side effects after chemo. 

5. Pray for us to see glimpses of God's goodness in each step of this journey. 

Port-a-cath placement

 Yesterday, I went to Medical Park to get my port-a-cath placed. The port is a permanent IV access point in my chest. Since chemotherapy can cause tissue damage, it is safer for to have a port versus a peripheral IV. This allows me not to have to stay perfectly still while my infustions are running. 

Dr. Stuart placed my port yesterday. Wil was allowed to come with me since it was I was having a procedure. Dr. Stuart is the same doctor that did both of my bowel surgeries and is a family friend. We were in great hands there. 

Out from surgery, still groggy!

I'm sore but nothing bad, I haven't take to take anything more that Tylenol or Ibuprofen for the discomfort. It was an outpatient so we were home by 3:30 pm. I couldn't eat or drink after midnight so I was hungry, thirsty, and needed caffeine since I didn't get to have my morning coffee. 

My treatment plan is underway now. Thankfully, I get my second COVID vaccine today.  I am so greatful that I could have it done before chemo starts. My first chemo infusion will be next Monday (2/22/21). It will be 6 rounds of 4 weeks for Taxol and Avastin. I get the chemo week 1, 2, and 3. The 4th week, I don't have any chemo. If everything stays on track, I will be finished the end of July/beginning August. I am planning on just working 2 days a week during chemo. 

One of the chemos (Taxol) does make my hair fall out. This is the same drug that I had during both other rounds in 2012 and 2014. My younger sister, Lauren, is a cosmetologist and does amazing work. Wil and I are going to take a day trip this weekend to Cary to see her. That way she can cut and dye my hair before it falls out. Stay tuned for photos!

Wil and I are very blessed to have great health insurance! I know a lot of people have been asking what they can do to help us. I feel humble and overwhelmed by the outpouring of love and support. 

My friend, Emma Hemphill, is still battling her cancer as well. It is tough going to through chemo but she does it with grace and leaning on God for strength far beyond her teenage years. If you would like to help, I have listed her GoFundMe page below. She still has a lot of treatments to go and donations would greatly help her parents and family. 

  https://gofund.me/0e4693f2

Thank you again for the prayers and I have listed more prayer requests below. 

1. Praise for easy recovery from my port-a-cath placement and no complications. 

2. Pray that I get minimal side effects from the COVID vaccine. 

3. Pray for peace and comfort for Wil and me as there are no visitors allowed in the chemo room. He has been at every treatment right by my side. He will is still planning on driving me to be as close as he is allowed. 

4. Pray that this new chemo is effective and shows regression of the disease at my next CT Scan. 

5. Continue to pray for our kids (especially Wilson) as we navigate how to explain cancer and chemo to him. 

Another fork in the road

 Thank you all for the outpouring of love, support, and mostly the prayers. 

We met with Dr. Skinner on Monday to go over the lab results and CT scan. What we have been praying is to see disease regression and for minimal side effects on the oral chemo. The praise is that my tongue has been slowly healing on the new mouthwash and is causing very little issues!

Unfortunately, there is a new area on the scan that has been growing. The way my cancer initially looks on the CT scan can be as normal abdominal tissue. Once it has been there longer, it becomes more apparant that it is cancer tissue instead of normal tissue. This the case for this new area in my omentum (the fat pad that protects your organs). My CA-125 (cancer marker) has been slowly increasing since the summer and did again this time as well. All of this points to the fact that it is time to move on to a new regimen. 

After much prayer, guidance from Dr. Skinner, and consideration, we decided to start IV chemotherapy. We were given options and will be starting Avastin (this prevents the cancer from making its own blood supply) and Taxol (which kills the cancer cells). I have had Taxol before and tolerated it and the Avastin will be a new therapy. I will have 6 rounds of 28 day cycle and will be getting a port-a-cath (permanent IV) placed. Then after the 6 rounds, I will (hopefully) stay on maintanence dosing of Avastin. 

We are still in the process of scheduling everything and are unsure of the timeline at this point. I will do my best to update the blog as much as possible, especially for specific prayer requests. 

Prayer Requests:

1. Praise that my tongue is healing. 

2. Praise that I will be able to get my 2nd COVID vaccine before starting chemo. 

3. Pray for guidance as we try to explain all of this to the kids, especially the visible aspect of me losing my hair. 

4. Pray for the effectiveness of this therapy. Pray for a miracle that this will rid my body of this cancer. Pray for minimal side effects and ability to be a wife, mom, and nurse during this time. 

One in million

 First of all, sorry that I have been slacking on keeping everyone updated! It has been a busy time with family, work, and the holidays. 

Since taking the oral chemo we have experienced some bumps in the road. My first Echo (ultrasound of my heart) shows my heart structures were all good but my heart rate was really low. Normal is 60-100 and mine at the time of the exam was 42. Looking back at my Garmin watch, my heart rate was dropping in the upper 30's and low 40's. 

My oncologist, Dr. Skinner, had me stop the medication for a week. My pharmacist and whole team did a lot of research and I was able to reach out to Johns Hopkins as well. Dr. Armstrong at JH only had one patient that had this same issue but was only after being on the medication for 2 years. She agreed with Dr. Skinner's plan to go back on the oral chemo at a lower dose then do a heart monitor to make sure that my heart rate was safe. 

My heart rate has been stable since decreasing the dose. THEN, I started having issues with my mouth. It was super painful, cracked and bled, and had ulcers on it. It was so bad that it was keeping me from sleeping and making it difficult to eat and drink. So I had to come off of it for another week to let my tongue have a break. I still have an ulcer on my tongue and am trying another medicated mouthwash to see if that can help as well (I've tried 2 others already). 

Since posting, my cancer markers went up and then back down. We will be doing more labs and another CT scan on 2/3 then seeing Dr. Skinner on 2/8 to go over the results. 

Here are some specific prayer requests: 

1. Praise that my heart rate is stable on the lower dose. 

2. Pray for my tongue to heal and the new mouthwash to help heal the current ulcer. 

3. Pray that my cancer markers decrease and CT scan shows evidence of disease regression. 

4. Pray for peace in the waiting and in God's timing for all things. 

One month down

One month of my oral chemo has gone pretty well. When I started it, I had nausea that I had to take frequent medication to control. The last week or so it has gotten a lot better and I'm only having to take the medication as little as once a day. Yesterday I didn't need any at all! 

I still have GI issues but a lot of it is finding the right balance of all of my medications. I started having the skin manifestations. It looks like white heads all around my nose and chin and is painful. My younger sisters sent me skin care products that are helping. I saw my dermatologist that started an antibiotic ointment too. 

The last symptom I'm dealing with is the dry skin. Wearing gloves at work and sanitizing and washing my hands frequently make it worse. I am getting cracks which are painful and burn. 

I kept telling Wil that I've had worse and that is true. Traditional chemo was SO MUCH worse. The nausea was a lot worse, there was fatigue, and it affected my immune system. This oral chemo doesn't affect my white blood cell count which is very important during a pandemic! 

Wil and I took our trip up to Baltimore to be seen at Johns Hopkins. We can look back and laugh at it now but it felt like almost everything went wrong with the logistics. 

To start, we got a rental car and had to drive to the airport (40 mins away) to pick it up. When we were almost there, I realized I didn't pack my chemo. Well, that can't happen so we were going to have to backtrack and waste over an hour to get it. 

Then the airport was having construction which was difficult to figure out how to get to the rental car place and parking deck. The first car we got in reeked of cigarettes, so had to walk all the way back into the airport to get another car. We did get a BMW which was a sweet ride. 

We had a hotel at the inner harbor. I was able to go out to dinner with my work friend, Lindsay, who I hadn't seen since Parker was born. It was great to catch up with her! 

The next morning, Wil and I walked around the inner harbor before our appointment at Johns Hopkins. We made our way to the hospital, which was HUGE. Overall, it was a good visit. The resident told us that I had the most records sent over that she had ever seen. I told her I accumulated at lot over the last 8 years. 

The news we received was that they agreed with the current oral chemo treatment and had other patients have great quality of life on it. The doctor recommended only doing one chemo at a time. Her recommendation was to give this oral chemo 9-12 weeks and rescan. If the tumor is stable or shrinks, then it is a good treatment and to continue. If the spots grow, then time to consider other options of therapy. We are also now an established patient, so in the future we can send a MyChart message to get a second opinion or see if I qualify for a trial drug. 

We celebrated with a seafood lunch . I wanted crab too but the taste made my nausea act up. Wil had no problem finishing off the crab soup and crab cake by himself. He made it disappear so quickly!

We took a slight detour and walked around DC before we went to my Uncle Mike's and Jean's for the night . We both had a lot of fun and need to come back soon. We only got one picture with Uncle Mike and Jean, and it was of their sweet dog Nugget! 

We might've felt like logistics were going wrong, but it was totally God's timing at work that we couldn't see in the moment - the last stop before turning in the rental car was at a rest area where I ended up doing CPR on a heroin overdose.  It had been almost a decade since the last time I had done CPR but my training kicked right in and all we know is God used us to help that man out and we pray he is doing much better now.  

Our prayer requests:

1. Prayers for this chemo to be effective and show no signs of disease on the follow up scan. 

2. Praise the nausea is under better control as well as the skin issues. 

3. Prayers for me to be protected from the rare but severe side effects to the current chemo. 

Thank you again for all my prayer warriors! We serve a big God who can do big things.