Tuesday, May 20, 2025

I like to be a unicorn

I have never liked to follow the norms- 25 and diagnosed with "old women's cancer," weird and rare allergic reactions, and now an odd place for a tumor to grow. 



I had my annual physical and asked if I could go ahead and have a mammogram even though I wasn't 40 yet. So that was ordered and a bone density scan. The scan showed that I have osteoporosis - from being menopausal since 25, being on hormone blockers, a lot of steroids, and chemo. I kind of knew that was going to be the results. Thankfully, we go to church and play baseball with Amy Mitchell who is a NP with years of experience in this area. I'll be doing a yearly infusion to help and she changed some of my over-the-counter supplements. 

My mammogram came back completely normal. Wil joked that I finally passed a test. 

It was time for my PET scan and going in to see my oncologist, we joked with her that at least my boobs were good. Then Skinner just gave me a look... She explained that the tumors around my bladder and intestines were either stable or slightly smaller. BUT I had a tumor on the left side of my sternum in my breast and attached to my pec muscle. Skinner said this isn't a place that ovarian cancer normally goes. 

The plan changed so many times- general surgeon to remove, then to breast oncology surgeon to remove, then needed a diagnostic mammogram and ultrasound with biopsy first. 

Thankfully, my wonderful nurse navigator - Robin- talked to the breast navigator and they were able to get me in earlier for the tests. 

I was hitting my knees and telling God that I just couldn't handle a secondary cancer. I didn't want to... 

The diagnostic mammogram HURT. Since my tumor is on my chest wall, it was hard to get it pulled in to get an image of it. Then I had the ultrasound and Wil and I waited to see the radiologist. Thankfully, we met with him that day. He said that it didn't look or act like breast cancer. He thought it was a metasis of my original cancer and didn't recommend a biopsy since that can spread the cancer. 


Then back to the breast oncologist surgeon to meet with her. Dr. Christman agreed with doing a surgical removal of the mass and then sending it to pathology to get a definitive answer for what it is. We had to plan the surgery to be a Thursday or Friday before chemo. Then push chemo out a week to heal. 

On top of all of this, I'm having a lot of trouble with my teeth. Which makes sense they are just like bone- and the rest of my bones are full of holes. I have to have a crown replaced, root canal with a crown placement, and 4-5 fillings that have cavities around them. This will have to be done in multiple sessions with one dentist and one endodontist. I've had one session done so far. 


I was able to sneak another chemo in on May 5th. Messy hair, reading glasses, and waiting for my Benadryl nap. 


I will have surgery this Thursday, May 22nd at Medical Park. It should be outpatient and take about an hour. 

Prayer requests: 
1. Pray for the surgery to go well, for the healing process, and for the pathology results. to come back quickly. 

2. For Wilson and Parker as they process me having surgery- to not be scared or nervous . 

3. Praise for having a great team of doctors and nurses to take care of me. 

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