First of all, I want to thank you all for the love, support, but most of all the prayers during our cancer journey. It is a daunting task at times but I have a lot of love and support to help me and crazy kids to keep my smiling!
One song that has really helped me and has kept me focused on God and His plan for me has been by Hope Darst - Peace Be Still.
I don't wanna be afraid
Every time I face the waves
I don't wanna be afraid
I don't wanna be afraid
And I don't wanna fear the storm
Just because I hear it roar
I don't wanna fear the storm
I don't wanna fear the storm
Peace be still
Say the word and I will
Set my feet upon the sea
'Til I'm dancing in the deep
Peace be still
You are here so it is well
Even when my eyes can't see
I will trust the voice that speaks
It is true, I don't want to be afraid every time I face cancer but I am human and fear sneaks in. It isn't easy, it hurts- emotionally and physically but I know there are blessings in trusting in God and listening to Him.
To update everyone, I had my PET scan and Dr. Skinner called with the results and Wil and I went in to see them and go over treatment plans. The PET did reveal that the spots that were seen on the CT were "hot" which means cancer (in the picture below it is the round very bright spot). The great news is that the PET didn't reveal more disease than what was expected from the CT. I have had some people ask me if it is still ovarian cancer since I don't have my ovaries (and haven't had them since 2012). The answer is yes, still the same cancer that keeps coming back.
Wil and I have prayed diligently about the treatment options that were presented to us. We decided to go with the oral chemo drug but to start it after our family vacation mid-September. I have to get an eye exam, Echocardiogram (ultrasound of my heart), labs, and chemo teaching done before I am to start the medication. One of the praises is that insurance has already approved the med, so we are good to go on that front. Wil and I go in on 9/2 for the chemo teaching and the labs, awaiting insurance approval for the echo.
We also decided it was time to get a second opinion. We see this not that we don't trust our oncologist because we most certainly do, but just as gathering more information. It is possible to get other treatment options (for now or in the future) or that we end up with the same exact treatment plan we are already pursing.
Thank you to Jim Condon, one of our family friends, for pulling some strings for us at Johns Hopkins. Wil and I will be going up there the beginning of October to be seen in person. One of the people that helped set this up was named Lisa. Another God moment happened when she called me to get my details, and asked about my (919) area code number. I've had the same cell number since high school and told her I grew up in the Raleigh area. Lisa told me that she is from PA but went to college in Winston-Salem. So we got to talk about Dewey's Moravian cookies and sugar cake. She also said that it was a nice change of pace to have such polite people to talk to when we kept saying "yes ma'am and no ma'am."
Athena's Run for GYN cancers has been a great event we have participated in for the last 8 years. Due to COVID, there will be no actual run this year but they are still raising money. This money goes towards research, funds special projects for the local GYN cancer support group that I have been part of since my diagnosis, and much more! Please consider "adopting" a flamingo to flock the yard at my cancer center and help in the fight against this terrible disease.
Life doesn't stop just because you have cancer. I still work full time, I am running (having to start back slowly after my stress fracture), spending time with family, and enjoying the life God has given me.
Right after a run
Story time with Daddy
More than anything, we love having prayer warriors out there. Here are requests and praises:
1. Prayers for continued wisdom and guidance as we start this next treatment.
2. Prayers for minimal/manageable side effects from the medication.
3. Pray that the drug is effect and works quickly.
4. Praise for getting second opinion scheduled.
5. Praise that the new chemo drug was approved by insurance.
6. Praise the PET results were consistent with the CT and no further disease was seen.
Love you sweet friend!
ReplyDeletePrayers and praises coming from the Littell family. If anyone can beat this, it’s you!!!
ReplyDeleteWe love you and Wil so much. I hate you are having to face this giant again. Thank you for the update and with how you need our prayers.
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All my love and prayers still coming your way, sweetie❤️
ReplyDeletePraying for you and your family God’s got this battle and is mighty to heal
ReplyDeletePraying so hard for you and your beautiful family lady. I run a non-profit to help ladies in treatment. Please let me know if I can help you in any way beautiful lady. Sending you giant hug and nothing but love .
ReplyDeletePraying for you and your family Katie.
ReplyDeleteAnything I xan do; anytime you need something
ReplyDeleteYou are glowing and are such a positive inspiration to all. Sending love and prayers to you all! 🙏❤
ReplyDeleteLove you sis!
ReplyDeleteStrongest person I know! I’m praying for you every second I have. I’ve looked up to you since I was a kid but now even more.
Thank you for the update. We are all praying for you as you begin your chemo treatments after your vacation. Congratulations on getting into Johns Hopkins! You are so so beautiful and we are so proud of you!! Enjoy your precious family! We love you.
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