Not again, not now. Those were my first thoughts when the pain started. I tried to ignore it for weeks, hoping it would just go away. I had a sinking feeling that the cancer was back but kept praying that wasn’t the case.
In September, Wil and I made our way to my oncologist for my six month check up. I told her about the pain I had been experiencing. My exam was completely normal but she ordered a CT scan. After waiting for insurance to approve it, I went in for scan. Then I got the call from my doctor. I had an enlarged lymph node in the area my cancer has been before. She was ordering a PET scan which would shows cancer as “hot.” We continued to pray that it was not cancerous, but God had other plans.
I got a call the day after my PET scan from the scheduler saying I needed to come in the next day at 3 pm to see my oncologist. I felt like I had been punched in the throat , my breath was knocked out of me. I immediately tried to called Wil who was trying to call me at the same time. I knew he was upset too. We had to continue to wait, which sometimes is the worst thing.
The next 24 hours seemed to creep by. I just wanted to know what was going on in my body. I wanted the action plan, I wanted to fight this thing head on.
Wil and I prayed in the car before we went into the cancer center. My dear friend prayed for me the day earlier and it stuck with me. “Dear God, if we had the immense love for Katie that you do and the wisdom of the future that you did, we know that we would want the same thing Lord.” I continued to pray that God’s will would be my own.
As we walked into the renovated waiting room, I saw pictures on the wall of survivors, myself, and my dear friend Tracy who has already gone on to be with the Lord. I missed her with an intense hurt especially going through this again.
We were escorted back to our exam room and waited some more. Dr. Skinner came in and sat down and told us “this isn’t the end of the world but we have work to do.” She went through the whole scan and explained it all. When she scrolled down to my pelvis, that lymph node lit up like a spot light, not a good thing. She explained that there was also a place on my colon that had tumor pressing into it. This would mean open abdominal surgery, the third one in 7 years. A general surgeon (who helped with my first surgery) would be doing the bowel resection. We will meet with him on 10/22 for more information. There is a chance that I may have to have a temporary ileostomy to allow my bowel resection to heal properly.
Since my cancer has historically been low-grade (meaning it doesn’t grow quickly), new research has shown that chemo is not very effective. The plan is to send the tumors to pathology to make sure it hasn’t mutated to high-grade (quickly growing). If it is still low-grade, then no chemo and I will start an oral medication to stop the my body from making estrogen from adrenal glands (which feed my cancer).
My blood marker (CA-125) has never been very reactive to my cancer so it isn’t a good indicator for me. My doctor ordered a different blood level (HE-4) that may help to monitor me in the future.
As soon as we walked back to the truck, I lost it. I was mad and angry about having cancer again and mad that I may have to have an ileostomy . I literally folded over in my seat, crying and screaming. I was crying out to God. I yelled my prayers, I screamed for peace, I sobbed not to have to have the illeostomy. There were tears and snot everywhere. I screamed and cried so hard I actually broke blood vessels all around my eyes. Finally I composed myself enough that Wil could drive me home.
My husband was in protector mode. He was trying to do what would be best for me. He made sure to notify our families so I didn’t have to put it into words. We decided that we wanted to get the kids from daycare since that would help preoccupy our minds. I called my friend Erin from work who is also battling ovarian cancer. Since she is in the medical field, she understands the ins and outs of the disease. It's really good to have a young survivor that understands the journey.
Needless to say, we've seen God move mountains many times in our lives and we know he will do it again. We will enter this sword fight armed with stones knowing that God's power is sufficient for us.
We ask for prayers that the spot on my colon is small and won't require an ileostomy, that the recovery is quick and manageable, and the cancer hasn't mutated to high-grade.
Certainly praying for you and sending love!!!
ReplyDeleteStay strong and positive. Sending prayers.
ReplyDeleteMy Sweet friend Katie, I'm praying extra hard for you every day. You are strong and yes God has moved many mountains and he will continue to do so. If you need anything please let me know. Love to you and Will.
ReplyDeletePrayers for you and your family stand firm God's got this!!
ReplyDeleteMy whole family is praying hard for you and your family Katie. My sword is ready and the stones are in place to fight. We love you so.
ReplyDeletePrayers for positive outcome, quick healing and recovery. Prayers for the surgeons and nurses that God guide their skilled hands. Prayers to keep you strong through this journey. Prayers for your family to ease their concerns. and tight hugs to you.
ReplyDeletePraying for God to wrap His loving arms around you and give you strength for whatever His plans are for you. Your faith in Him will see your family through whatever storms may come. Eyes on the cross and prayers being lifted.
ReplyDeleteGod bless you and heal you. My daughter has had 4 occurancs in over 20yrs She is now out 5 yrs,, again.It is thru prayers that has brought her thru.
ReplyDeleteOh sweet friend- I can’t begin to imagine the feelings! God is on your side and He will move mountains for you! Love and hugs abundantly! ����❤️����
ReplyDeleteI am so sad to hear this news. Thank you for your honesty and for helping us know what to pray for. Your army of supporters is strong and and ready to pick up whatever pieces of life you can't, or don't want to deal with. Hugs and love to you. <3 <3 <3.
ReplyDeleteAlso... on a funny note... if your sister said this crazy woman was talking to her at Athena's Run all confused about why she only had one kid and there was no baby around ... that was me!:-D
- Julie Lanford
We are praying for you, Katie! Thanks for sharing from your heart so we know how to pray!!!
ReplyDeletePraying for you and your family Katie❤
ReplyDeleteSitting here crying for you...but stopped those tears and prayed hard for you and your family and the doctors.
ReplyDeleteI will pray for you and Will.
ReplyDeleteHi Katie,
ReplyDeletePraying for a speedy recovery. I know it is tough, but you my friend are not alone. Having some difficulties myself, but Giving Up is not an option. So,fight, trust, and Hope.
As always, I will pray for you!! I know God is with you and your beautiful family. "For I know the plans I have for you" declares the Lord, "Plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
ReplyDeleteSending our love and prayers Katie and Wil and to your parents as well. Be strong, you are one of the 1000 points of light in the world. Shine brightly.
ReplyDeletePrayers Katie and Wil! I am so sorry. Sad, mad, but with hope I have and share with you.
ReplyDeleteHi Katie - my name is Ashlee Johnson. We've never met, but I'm a new friend of Hannah Shipton's. My husband and I are praying for you -- contending for the Lord to be merciful and to show himself faithful and strong.
ReplyDelete